Resources

To help navigate complex journeys.

Our Survival Guide #1

TOPICS INCLUDE HOW TO:

  • communicate with medical teams

  • process having a baby with disabilities

  • make memories in palliative care

  • be there as a midwife, doctor or nurse.

“Navigating a rare pregnancy in New Zealand can only be described as a living hell at times. In memory of our baby Jay we created ‘our survival guide’ for parents and medical professionals. We hope to make other journeys easier than ours.”

 
 

FOR PARENTS:

  • with high risk pregnancies

  • whose baby has a rare genetic disorder

  • whose baby has a terminal condition

  • who know they’ll be going or on a NICU journey

  • who are grieving.

FOR MEDICAL PROFESSIONALS:

  • to gain insight into what it’s like for parents

  • to take some inspiration for how to improve your own practice

  • to highlight professional development opportunities for your team.

Our Survival Guide #2: COMING SOON

TOPICS WILL INCLUDE:

  • navigating a pregnancy after baby loss

  • tools and resources for wellbeing.

“We’re very lucky to have welcomed our second baby in January 2024. We’re in the process of compiling a resource to support parents navigating a pregnancy after baby loss, sharing things that helped us through.”

 
 

FOR PARENTS:

  • who have experienced baby loss

  • who have previous medical trauma

  • who have previous complex pregnancy complications.

FOR MEDICAL PROFESSIONALS:

  • to gain insight into what it’s like for parents

  • to take some inspiration for how to improve your own practice

  • to highlight professional development opportunities for your team.