
Resources
To help navigate complex journeys.
Our Survival Guide #1
TOPICS INCLUDE HOW TO:
communicate with medical teams
process having a baby with disabilities
make memories in palliative care
be there as a midwife, doctor or nurse.
“Navigating a rare pregnancy in New Zealand can only be described as a living hell at times. In memory of our baby Jay we created ‘our survival guide’ for parents and medical professionals. We hope to make other journeys easier than ours.”
FOR PARENTS:
with high risk pregnancies
whose baby has a rare genetic disorder
whose baby has a terminal condition
who know they’ll be going or on a NICU journey
who are grieving.
FOR MEDICAL PROFESSIONALS:
to gain insight into what it’s like for parents
to take some inspiration for how to improve your own practice
to highlight professional development opportunities for your team.

Our Survival Guide #2: COMING SOON
TOPICS WILL INCLUDE:
navigating a pregnancy after baby loss
tools and resources for wellbeing.
“We’re very lucky to have welcomed our second baby in January 2024. We’re in the process of compiling a resource to support parents navigating a pregnancy after baby loss, sharing things that helped us through.”
FOR PARENTS:
who have experienced baby loss
who have previous medical trauma
who have previous complex pregnancy complications.
FOR MEDICAL PROFESSIONALS:
to gain insight into what it’s like for parents
to take some inspiration for how to improve your own practice
to highlight professional development opportunities for your team.
